Wednesday, July 20, 2005

Bad News

We haven't kept up with the weblog the past few days because things have taken a rapid turn for the worse. I arrived here Monday evening, and all seemed fairly well. Ryan wasn't doing so well from an oxygen saturation standpoint, but there was nothing completely alarming about that. Late Monday night/early Tuesday morning, Ryan desaturated to the point where he needed to be put on a breathing mask that is two steps above (below?) the cannula. This was enough of a crisis to call Dr. Andreansky in at 3:45 a.m.

An echocardiogram the next morning showed fluid around Ryan's heart -- something we have seen before, but this time, there was much more -- so much that the cardiologist wanted to do an emergency procedure to drain it. For reasons too lengthy to discuss right now, we chose another less drastic option, which is the use of a continuous diuretic to attempt to slowly decrease the fluid in Ryan's body. The really bad news is that sfter the echocardiogram, Ryan had a CT scan which showed that he now has pneumonia. The chances of treating this pneumonia are not very good at this point. The doctors cannot tell whether it's bacterial, viral, or fungal pneumonia because none of the cultures are coming back positive. This means that they have to use multiple drugs for each type of pneumonia, many of which are nephrotoxic. It also indicates that some of the antivirals, antibiotics, and antifungals that Ryan already had been taking weren't working.

We have been told that Ryan is extremely sick at this point and may not make it, so Keith and I are both in the hospital now. For those of you who have been sending good thoughts/vibes, praying, or just wishing Ryan good luck, please crank it up because he needs you now more than ever.

10 Comments:

Anonymous Anonymous said...

My thoughts, hopes, and prayers are with all of you -- especially Ryan. He is a very special little boy, and his strength and courage, as well as your own, are awe inspiring.

4:22 PM

 
Anonymous Anonymous said...

We are praying for Ryan and your whole family during this time. We have also enlisted the prayers of numerous other friends. Please know that you have lots and lots of people thinking of you and praying for you.

7:58 PM

 
Anonymous Anonymous said...

YOU HAVE ALL MY PRAYERS .xx I WILL CONTACT ALL MY FRIENDS TOO....

10:20 PM

 
Anonymous Anonymous said...

ALL MY BEST WISHES AND HEARTFELT PRAYERS ARE WITH YOU !!XX I WILL ALSO CONTACT ALL MY FRIENDS....

10:22 PM

 
Anonymous Anonymous said...

This is a saga of limitless love, intellect, determination, and valor. My thoughts are with you always.

1:18 AM

 
Anonymous Anonymous said...

I pray for Ryan everyday and that you and your family has the strength to handle all the ups and downs of his illness. Try and stay strong and know that there are many people who have you all in their prayers.

8:19 AM

 
Anonymous Anonymous said...

Cheryl & Keith

I just heard what you and your family have been going through over the past year. I don't have the words to express how sorry I am to hear about Ryan. I cannot even imagine what you are going through. However, having read through your blog, I can see that the two of you are managing this tragedy with courage, strength and grace. If there is anything I can do for you, please let me know.

Sarah Chilton

11:50 AM

 
Anonymous Anonymous said...

Sending all the positive energy I can muster!

5:30 PM

 
Anonymous Anonymous said...

Keith and Cheryl, I've been following this blog ever since Keith pointed me to it. Your inner strength knows no bounds. I'm praying for you and Ryan in the hope that he will find that same strength.

10:03 AM

 
Anonymous Anonymous said...

Dear Cheryl & Keith,
I am Renee's Mom. Renee told me about Ryan's illness and I have been reading your blog since it began.

At first I didn't want to comment feeling that it was just too personal. But now I want you to know that there are a lot of people out there that have been deeply touched by the strength and courage of your family. You are special parents & you have a very special little boy. Our prayers and thoughts are with you on your journey.

11:03 PM

 

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